THREE DECADES OF INFLUENCE
In 1986, the Pynoos and Neely families, two families affected by keratoconus, placed a small advertisement in a Los Angeles newspaper seeking others interested in learning more about KC. The response was significant and they realized the demand for a support organization.
The National Keratoconus Foundation was established and produced the first edition of What is Keratoconus? A Reference Guide for Patients and their Families. This booklet has been updated and revised over the years, and has been shared, free of charge, with tens of thousands of individuals.
Now located within the Gavin Herbert Eye Institute, NKCF continues to provide support and information to the KC community. We respond to on-line inquiries or to our toll-free telephone line, 1-800-521-2524.
We host events and produce regular e-updates with information from the medical literature, research study results, and profiles of individuals living with KC. With the additional expertise available at an academic medical center, NKCF has been able to broaden its reach, promoting research, advocating, educating, and raising awareness about the experience of living with keratoconus.
NKCF sends out over 1,000 referrals to KC patients looking for eye care professionals.
65% KC patients encourage online community for support and advice.