Who We Are

The National Keratoconus Foundation (NKCF) is an outreach program of Gavin Herbert Eye Institute at UC-Irvine. We are dedicated to increasing awareness and understanding of keratoconus (KC), and aim to provide resources to individuals with KC. We unfortunately do not provide financial assistance. Please browse our website to find out more about KC.


In case you missed it:

“Tommy Pham’s Journey”

Dr. Edward Bennett, OD, Professor Emeritus at the Univ. of Missouri St. Louis conducts a one-on-one interview with Tommy Pham, outfielder for the San Diego Padres in this World KC Day webinar.
Tommy shares his experience as a professional baseball player living with keratoconus. He talks about his diagnosis, subsequent treatments, and how he copes with this vision disorder while excelling in a career that requires sharp vision. Tommy is one of the most dedicated athletes in Major League Baseball. Hearing his story will inspire you. 
This webinar is moderated by Dr. Jason Marsack, PhD, of the Univ. of Houston College of Optometry research faculty.

To watch a recording of the webinar, click HERE.

 


BEST OF THE BEST: Our TOP DOCS of 2020

Dr. Michael Raizman, MD is truly Best of the Best.  He has been nominated as an NKCF Top Doc in previous years and this year his nomination came from his patient, CF, of Westborough, MA.  She wrote, “Dr. Raizman not only gave me back my life, as other doctors may have done, he also stayed by my side and comforted me through it all.”

One name that comes up frequently when lists of keratoconus experts are compiled is Clark Chang.  Dr. Chang is Director of Specialty Lenses for the cornea service at Wills Eye Hospital in Philadelphia.  The mother of a 21-year-old patient, MR, of Bangor, PA wrote in her nomination, “My son was diagnosed with KC when he was 15; he never wore contacts so everything was completely new to him…  Dr. Chang always takes his time and speaks directly to my son.  Dr. Chang makes this disease bearable.”  Another patient, EA, from Lincoln, RI wrote, “Dr. Chang takes the time to know his patients, their goals, their struggles and incorporates those into their care.

In addition to these Best of the Best, 70 other doctors from 24 states were nominated by their patients.   Some of the doctors are university faculty members, others are members of private practices that specialize in the care of individuals with keratoconus.  Still others are primary care eye doctors who show kindness and empathy toward their patients.  One quality almost universally noted in the nominations was the ability to listen to their patients and work tirelessly to save or restore vision.  We salute these the Top Doc nominees for 2020.

To read more about Dr. Raizman and Dr. Chang, along with the complete list of nominees, click here.


COVID-19 and Corrective Lens Wear

Since the recent declaration of the pandemic of COVID-19 by the World Health Organization, many false rumors and inaccurate suggestions have arisen regarding corrective lens wear. Click to read statements by contact lens experts about corrective lens recommendations as they relate to COVID-19. Watch a recording of our webinar “What You Should Know: KC & COVID-19” hosted by NKCF with guest speakers Dr. Stephanie Woo, OD and Dr. Joseph Ciolino, MD.

Quick Resources

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NKCF is the world’s premier organization offering information about keratoconus.  Click here to learn more about resources available to you – either in print or on-line – including Living with Keratoconus, What is KC?, Corneal Transplant Surgery, and our regular e-newsletter.

You are not alone. The NKCF is here to provide support and information about KC, including a registry of eyecare professionals in the U.S. who have a special interest and expertise in the management of keratoconus. Click here to find a KC expert near you.

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Be a part of the KC community

Your story may inspire or reassure someone new to the KC community. Whether you were diagnosed last week or thirty years ago, you have insights about life with KC that are meaningful to others. Join our private message board, KC-Link to ask and answer questions.

News

What’s New?

Catch up on all the latest going on with KC research, breakthroughs, NKCF newsletters, and more.

Keratoconus: A Roadmap to Treatment [October 8, 2019 Webinar]

Please enjoy this recording of our webinar: “Keratoconus: A Roadmap to Treatment”

This webinar was led by our moderator, Dr. Jason Marsack, who discussed with Dr. Maria Walker and Dr. Matt Kauffman from the University of Houston, College of Optometry, where they shared their insight to what the newly diagnosed KC patient can expect.

This webinar was live on October 8, 2019. More webinars to follow.

Life With KC

MADE: A New Coronavirus Concern

Just as the world is growing comfortable wearing facemasks, some are complaining about new or worsening […]

ScanFitPRO Offers Novel Method to Custom Scleral Lenses

   Colorado resident Tricia* had been fit with close to half a dozen different gas permeable […]

BEST OF THE BEST: Our TOP DOCS of 2020

BEST OF THE BEST: Our TOP DOCS of 2020   Dr. Michael Raizman, MD is truly […]

About Us

The National Keratoconus Foundation (NKCF) is an outreach program of The Gavin Herbert Eye Institute, UC Irvine.

The NKCF is dedicated to increasing the awareness and understanding of keratoconus and the support of scientific research into the cause and treatment of keratoconus.

What is Keratoconus?

MADE: A New Coronavirus Concern

Just as the world is growing comfortable wearing facemasks, some are complaining about new or worsening […]

ScanFitPRO Offers Novel Method to Custom Scleral Lenses

   Colorado resident Tricia* had been fit with close to half a dozen different gas permeable […]

BEST OF THE BEST: Our TOP DOCS of 2020

BEST OF THE BEST: Our TOP DOCS of 2020   Dr. Michael Raizman, MD is truly […]

COVID-19 and Corrective Lens Wear

Since the recent declaration of the pandemic of COVID-19 by the World Health Organization, many false […]

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